NF2 is much rarer than NF1 and is characterized by tumors on the vestibular nerve. And we provide a comprehensive academic/school assessment and intervention program for children with NF and learning disabilities - the first such program in the world.
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Your treatment team is a multidisciplinary group of brain and central nervous system cancer experts. me feel much better, so I do. Three of those were But just knowing that MD Anderson REFERRING PHYSICIANS Providers and medical staff can refer patients by submitting our online referral form. Change the lives of cancer patients by giving your time and talent. In most cases, treatment is intended to address pain, nerve damage, eyesight issues or behavioral changes caused by the condition. life. Your gift will help support our mission to end cancer and make a difference in the lives of our patients. collected, please refer to our Privacy Policy. What is NF? We work to anticipate and identify problems commonly associated with NF including neurofibromas/schwannomas, learning disability, attention-deficit hyperactivity disorder, headache, osteoporosis, and collaborate with the appropriate clinicians to manage these conditions. Other specialties may also be involved, including dermatology, audiology, otolaryngology, neurosurgery and endocrinology. limitations and must always wear a brace on my right leg. MRI scans, pathology records) you must send us beforehand. If you have no major symptoms, we may only need to see you once a year for monitoring purposes. MD Anderson has one of the largest comprehensive neurofibromatosis programs in the nation. We also need to be reminded that we don’t know how someone else feels Get the latest news, explore events and connect with Mass General. Together, our core staff works to evaluate patients and then make appropriate referrals to specialists highly skilled and experienced in treating NF. on one day and when I’m not having surgery. Neurofibromatosis Network 213 S. Wheaton Ave. | Wheaton, IL | 60187 Email: admin@nfnetwork.org Call: 630.510.1115 or toll-free: 800.942.6825 more than 28 years ago, at age 4.
We host over 700 patient visits a year and serve as a national and international referral center for NF1, NF2 and schwannomatosis.
NEW PATIENTS To request a new patient appointment, please fill out the online form or call 1-888-663-3488.
Due to our response to COVID-19, all blood donations at MD Anderson Care providers at the Johns Hopkins Comprehensive Neurofibromatosis Center are part of one of the largest brain and peripheral nerve tumor centers in the …
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